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Resources included in GTR and where to locate a genetics professional

The NIH Genetic Testing Registry includes information from different resources and links to content-specific pages for these resources.

Table of contents

  1. Molecular Resources
  2. Clinical Resources
  3. Consumer Resources
  4. Locate a Genetics Professional

Molecular Resources

ClinVar
Information about sequence variation and its relationship to human health, NIH.

Genetics & Medicine
NCBI's molecular medicine databases and tools, NIH. See tips

Clinical Resources

GeneReviews®
Clinical information on genetic conditions, University of Washington. See NCBI's Advanced Search.

MedGen
Medical genetics conditions, clinical features, practice guidelines, hierarchies and more, NIH.

OMIM®
Online Mendelian Inheritance in Man, Johns Hopkins University.

Orphanet
Rare diseases and orphan drugs, European consortium.

NHGRI Talking Glossary
Genetic terms, images and animation, NIH.

Consumer Resources

MedlinePlus: Genetics
Consumer-friendly information about genetic variation and human health, NIH.

Office of Rare Diseases Research
Rare diseases information for patients, families, healthcare providers, researchers, educators, and students, NIH.

Locate a Genetics Professional

ACMG Genetics Clinics Database
American College of Medical Genetics and Genomics database, with map-based views.

NSGC Directory
National Society of Genetic Counselors directory.

NCI-Designated Cancer Centers
National Cancer Institute directory of professionals who provide cancer genetics services.

ABGC Directory
American Board of Genetic Counseling directory of board-certified genetic counselors.

Last updated: 2026-03-04T17:21:10Z